Home Up

Australia & New Zealand Groups

 

http://fainsa.blogspot.com/

Links to websites of disability community organisations

sca australia

fa network nsw

fa in sa

agsa

mda australia

logo-faraa

The Theresa Byrnes Foundation

The Theresa Byrnes Foundation (TBF) was formed in March 1995 by friends of Theresa Byrnes, a young woman with FA.

The TBF was established to continue and expand the fundraising efforts of the FAA and increase community awareness of Friedreich's Ataxia. The Foundations financial aim is to raise in excess of $200,000 to support scientific research into FA. These funds would go towards establishing a three-year postdoctoral fellowship. Such research would be a vital contribution to the global search for a cure for FA and other neuro-degenerative disorders.

In August of 1995 the foundation was officially launched by Dr Andrew Rufshauge, Deputy Premier and Minister for Health. Over the past 2.5years, the foundation has grown into a highly regarded and effective fundraising group. Through media appearances by Theresa and a series of events organised by and on the behalf of TBF the foundation has raised more than $150,000, and can boast high profile patrons such as artist David van Niven & musician Athol Guy.

The TBF recently presented the New Children's Hospital, Westmead with a cheque for $60,000. This payment was the first instalment in the 3 year combined project with the FAA of NSW focusing of gene delivery systems.

Their address is:

The Theresa Byrnes Foundation
PO Box 1888
Strawberry Hills,NSW 2012
AUSTRALIA